One thing I never learned about during pregnancy or even during the toddler years (until now) was febrile seizures. I had literally never heard of them and I read books, articles, pamphlets given by the doctors, and any other baby/toddler related reading material I could get my hands on. I read EVERYTHING. I thought I was so prepared and mostly I have been. Until now.

On Sunday night, my eyes were opened to febrile seizures (also known as fever seizures) when my 1-year-old had a seizure.

All day Sunday Liam had a low-grade fever. 99.4 is the one temperature that I remember. We chalked it up to teething and just tried to keep him inside (the real feel outside was over 100 degrees), keep him hydrated, and give him lots of cuddles. We monitored his fever throughout the day and it never went over 100 degrees. Totally fine, we’ve dealt with that countless times.

Bedtime came along and he went to bed without a problem. Nothing was unusual aside from that low-grade fever that had been lingering all day. I decided to not medicate the fever because it was so low and I really don’t like giving Tylenol or Motrin unless it is completely necessary.

Around 11 pm he woke up screaming. It wasn’t just a fussy little cry that I would normally ignore and let him go back to sleep on his own… it was a scream like something was wrong. I rushed into his bedroom and picked him up out of his crib. He was BURNING UP. I don’t think I’ve ever felt a child so hot before. I yelled for my husband and rushed downstairs to grab a thermometer. As I was taking his temperature, my husband went to get the Ibuprofen because it was obvious he needed something. I took his temp. under his arm and it read 102.6… with that kind of reading you have to add a degree so it was well over 103 degrees.

At the time, I was so worried and wasn’t thinking straight that I didn’t even add the degree, even though I normally would. In my head, his temp was 102.6 and even that worried me. Chris went upstairs to run a luke-warm bath to help cool him down.

I was cuddling Liam and talking to him about taking a bath because that usually makes him smile and cheers him up. I got no response but I kept talking and cuddling. All of a sudden he turned his head and started to shake. It was just a little shake. I remember saying, “oh buddy, you’re really not feeling well, you’re shaking a little”. Still no response from him. The shaking continued and I felt like my heart stopped beating. He was drooling, too. I knew something was wrong, even though the shaking was nothing crazy. It seriously was just a little tremor almost. Before I even said anything or reacted, my step-daughter sat up off the couch with a terrified look on her face and in that instant, I jumped up and started yelling for Chris. He wasn’t hearing me so I ran to the stairs and yelled even louder. He came running out and I said, “take Liam, I need to get dressed. We’re going to the hospital”.

When I came back downstairs the shaking had stopped but now he was just staring off. He literally looked like he was asleep with his eyes open. Chris was frantically trying to get him to respond or even look at us and rushed upstairs to splash water on his face. He was still out of it. All of a sudden, he blinked and turned to look at us. It still wasn’t his normal look, but it was something. We quickly loaded him into his car seat, gave Nevaeh strict instructions on what to do at home and who to call if she needed something (don’t worry, she’s old enough to babysit and both of the other toddlers were sound asleep), and headed to the hospital.

I sat in the backseat with Liam so I could keep an eye on him. I held his hand and talked to him the whole time. He still wasn’t being himself, but he was at least responsive. He wouldn’t talk to me, wouldn’t smile at me, wouldn’t even say “car, car” like he normally does when we are in the car. It was just a blank look, but he was blinking and looking around so I took it as an improvement.

So – we get to the hospital, told them what was going on and then sat in the waiting room. 15 minutes pass and they call us back to get him registered and take his vitals. At our local Emergency Department, we would usually have to go back to the waiting room after that until a room opened up. This time we didn’t have to do that.

They took his temp and it was 102.9, and that was about 30 minutes after Ibuprofen. Then they checked his other vitals and found that his blood oxygen levels were low and he wasn’t receiving as much room air as normal. They got a room for him immediately, gave Tylenol, and the doctor was in shortly after.

It was determined that he had a febrile seizure, which happens to toddlers when their fever spikes very suddenly. These kinds of seizures can last anywhere from a few seconds to 15 minutes. I honestly couldn’t tell you how long Liam’s lasted because at that moment the last thing I was worried about was watching a clock. I would guess around 3-4 minutes.

After this determination was made, it was time to figure out if something serious was going on. What?! The seizure wasn’t serious!? In my eyes it was, but the doctor said it’s more common than people realize and that since it was short, there wasn’t going to be any long-term effects.

Now, the first thing that popped into my mind was, “If this is so common why have I never heard of it before?!” After talking to several other mom friends, I realized that they hadn’t either!! All of those books and articles and pamphlets and nothing could even warn me that my child may have a seizure caused by a fever?! I’m still in shock.

Liam was tested for the flu, RSV, and strep throat. He had X-Rays done to determine if he had pneumonia or anything else going on in his lungs. He was checked for an ear infection. Nothing.

He slept most of the time we were there and didn’t even wake up when they checked for the flu and RSV. He was exhausted.

When that was all done and the tests all came back negative, they checked his vitals again and they were back to normal. Well, mostly normal. He was still only breathing 98% of room air, but it was better than the 90% before. His temp had gone down to 99.something. He was looking better and actually sitting up and talking. They sent us home.

We left with no answers other than to follow-up with his primary physician, give him amoxicillin, and rotate ibuprofen and Tylenol every 2 hours around the clock for 2 days.

Fast forward to the next day when we followed up with his primary physician… he said to not give amoxicillin (luckily we hadn’t filled the prescription yet. We wanted to wait for a more definite answer from his pediatrician) because it was just a virus and to not give the Tylenol/ibuprofen so frequently unless his fever came back.

We had a second follow-up appointment with Liam’s pediatrician today and all is well. He is a little congested but other than that he is good.

The most terrifying moment of my life turned out to be kind of “normal” in toddlers. While things could go wrong, as long as you are monitoring your child closely when it happens and helping them stay safe, everything should be okay.

I don’t want other moms to be as clueless about these seizures as I was. I can’t believe there isn’t more information readily available.

What to Know About Febrile Seizures

• These seizures normally happen when the child’s temperature is above 102 degrees.
• Febrile seizures do not always mean something serious is wrong.
• If your child is having a seizure, lay them on the floor or hold a small child face down on your lap.
• Lay the child on their side to keep their airway clear.
• Stay calm! It’ll help calm the child and you’ll be able to think more clearly.
• Try to time the length of the seizure.
• You don’t have to put anything in your child’s mouth to hold their tongue – it could actually injure the child.
• Talk to your child in soothing tones.
• I was told that we don’t have to bring him in if he has a febrile seizure that is shorter than three minutes, but you should call the doctor immediately and ask their opinion.
• You should take your child to the emergency department if your child’s fever won’t come down with Tylenol or ibuprofen, or if they are not acting normal. Go with your gut, you know your baby better than anyone else.

I hope it never happens to your little but, if it does, just try to stay calm (easier said than done, I know) while you assess what your next step should be.

Have you heard of febrile seizures before? Do you have any experience with them? Let me know in the comments!